Today we meet with nine year old identical twins Caleb and Kaden. They both have CF, DDF508, and Tourettes syndrome, and anxiety, and OCD. They were born and raised in Indianapolis Indiana.
Today we are meeting Jodi or Jo for short. She’s 18, from England, Uk and has cystic fibrosis. Jo was diagnosed with CF after a heel prick at one day old. She was tested after having a bowel operation from being born with a swollen stomach.
Claire is our next spotlight and her diagnosis story is a little different. Claire was not diagnosed until she was 8 years old. Unfortunately her records were lost at birth by her GP, including her heel prick test for CF. She endured 8 years of infections before she was tested again for CF and then got news that she indeed had Cystic Fibrosis.
Ashley is an inspiration in the CF world and has created her own non-profit, Breathe Bravely helping those with Cystic Fibrosis (CF). She is a professional vocalist and has her own private vocal studio where she helps young people find their voice. Her story is truly inspiring. Check it out below!