Today we are traveling across the pond to meet with Jessica Spoor from Leeds, England. Jessica’s favorite things to do include walking her dog, working out, baking and cooking. Her Instagram is ‘cffoodie’ – check out her creations!
Jessica’s family consists of her Mum, Dad and Brother who all live in Newcastle while she lives in Leeds with my dog Fern. She’s lived there since going to university and is lucky to have made a life there through working in the hospitality industry. Unfortunately, she is no longer able to work but has dedicated her time to fundraising for Cystic Fibrosis charities.
Her daily routine starts with breakfast and morning pills which include Trikafta. This is the new modulator drug which she started on the 1st January 2020. She has a high fat breakfast to take my pills and then I move onto physio and nebulizers. Then she makes sure to take her dog for a walk and go to the gym to keep her lungs healthy. In the evening she starts the morning routine again. Jessica focuses my days on good nutrition and exercise!
Jessica’s main CF symptoms are her lungs and before she started Trikafta I was constantly getting recurrent chest infections which meant IVs every month.
“I am very lucky to be on Trikafta on compassionate grounds as it is not yet licensed in the UK. I am being assessed for lung transplant, but I am happy to say I am too well since I started taking this drug. My quality of life has improved dramatically, and I cannot wait to see what happens next.”
Jessica has great hope for the future that one day CF stands for Cure Found. Treatment has advanced incredibly since she was a child and it continues to do so.
“The CF community is a close one and we all look out for each other. We all help each other out and that is why I spend so much time fundraising for CF charities. I have made some great friends who have CF and we all share the same strength and determination to not let anything stop us. We make sure to live life to the fullest.”
Thank you Jessica for sharing your story with Cure CF and our Cure CF family. We applaud and thank you for all the hard work you put in to raise money for a CURE!
Please check out Jessica’s social media below!
If you are interested in providing a donation to Cure CF as we search for a cure please CLICK HERE
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