One glance at Alex and you will see that she is a typical kid. She is energetic, happy, curious, loving, patient, cautious, and incredibly brave. She sits through hours of therapy and breathing treatments each day and takes more medications than most adults. We work very hard to ensure that Alex stays as healthy as possible.
Alexandra Elaine was born in April 2013. At five days old, when we had our first visit to the pediatrician’s office for the usual “well-baby” checkup. But despite feeding every two hours, she still had yet to get back up to her birth weight after nearly two weeks. The pediatrician had noted that she had some abnormal findings with her newborn screening; the follow-up genetic testing later would confirm the diagnosis of cystic fibrosis.
That same week, we took Alex to her first CF clinic appointment where we met an amazing team of doctors, nurses, respiratory therapists, social workers, and dieticians. We were able to start medications that same day and saw an immediate improvement in weight gain – those medications saved her life.
In the last two years, our family and friends alone have raised over $63,000 for the CF Foundation.
Alexandra means “Protector of Mankind” in Greek. Before Alex was born, we decided that we wanted a strong name for our daughter – we just didn’t realize how strong she would be. We are extremely lucky to have a beautiful daughter – there is only her future to celebrate!